Genetics


LOTS Sufferers Combat Ignorance as Well as Symptoms

By Rachel Zuckerman

When people find out Shirley Webb has late onset Tay-Sachs disease (LOTS), their reactions have ranged from “But you’re older than 5 years old!” to “Why are you alive?” Once, at work, someone saw her pull away from her desk in her wheelchair and exclaimed, “I didn’t know you were crippled!”At 66, Webb, a co-founder of theRead More


Drug Trial Brings Hope to Late Onset Tay-Sachs Patients

By Rachel Zuckerman

Doctors are experimenting with an oral medication known as Zavesca as a possible treatment for late onset Tay-Sachs (LOTS) disease, it was reported at a conference in Philadelphia last month.New York University School of Medicine and Cleveland University Hospital both launched trials using the drug, whose chemical name is OGT918 or miglustat, onRead More





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