When Marcia Watson-Levy was diagnosed with breast cancer in 1997 at age 58, she suspected that heredity played a role: Her sister Rhoda had died of breast cancer 12 years before, at 52. Yet Watson-Levy, who then lived in San Francisco, said that none of her physicians — her primary doctor, her surgeon or her…
An email popped up in Hershel Richman’s inbox. “Your new personalized risk report is now available through the CPMC web portal!” the email cheerfully informed him. Its contents were tactfully vague: some talk of “genetic counselors” and a medicine collaborative. But this wasn’t some credit report spam, or a Nigerian phishing scam. No, Richman, a…
For three days in April, about 70 families whose lives have been upended by Tay-Sachs disease gathered in San Diego for the annual National Tay-Sachs and Allied Diseases conference. The event — which attracted families caring for children with Tay-Sachs, as well as those who have lost loved ones to the degenerative disease that claims…
When Jennifer was 26, people started asking her why she was limping. An exercise enthusiast, she brushed aside the question. Then she noticed she couldn’t run laps in her kickboxing class. No problem, she thought — running wasn’t her thing. Next, she started falling behind some older women in Pilates class. By that time, she…
Growing up can be hard under the best of circumstances. But try sharing with a friend your most intimate problem, one you secretly confront every day: that you live with a disease ravaging your waste disposal system. It’s a lonely journey, according to interviews with young people affected by Crohn’s disease or ulcerative colitis, collectively…
Entering the Hummus Bar in midtown Manhattan, I knew this was going to be the most challenging moment of my weeklong gluten-free experiment. I’ve been in love with hummus for years. When I lived in Tel Aviv, at least three times a week I ate a plate of the chickpea dish for lunch. I never…
It is well known that the patterns of activity in the human brain change according to the different tasks that people are performing. But could it be that an imprint of these patterns remains on the brain hours and even days later, like footprints in the sand? At the Weizmann Institute of Science in Rehovot,…
About once a month, Rebecca Oling develops painful lesions inside her mouth, a symptom of a rare skin disease she’s been battling since 2004. With medication it takes the lesion roughly a week to dissipate. But Oling, in remission, considers herself one of the lucky ones. Feeling stressed by the deaths of her stepfather and…
100% of profits support our journalism
