Rachel Zuckerman
By Rachel Zuckerman
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Culture LOTS Sufferers Combat Ignorance as Well as Symptoms
When people find out Shirley Webb has late onset Tay-Sachs disease (LOTS), their reactions have ranged from “But you’re older than 5 years old!” to “Why are you alive?” Once, at work, someone saw her pull away from her desk in her wheelchair and exclaimed, “I didn’t know you were crippled!” At 66, Webb, a…
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Culture Drug Trial Brings Hope to Late Onset Tay-Sachs Patients
Doctors are experimenting with an oral medication known as Zavesca as a possible treatment for late onset Tay-Sachs (LOTS) disease, it was reported at a conference in Philadelphia last month. New York University School of Medicine and Cleveland University Hospital both launched trials using the drug, whose chemical name is OGT918 or miglustat, on 15…
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News From Member of the Family To Member of the Tribe?
Burberry raincoats, designer biscuits, health insurance and therapy just aren’t enough for some canines. Fidos and Fifis are now bounding — or being dragged? — up the evolutionary ladder. Sometimes it’s hard to tell who’s leading whom. So why stop at “member of the family” when there’s “member of the tribe”? Enter the “Bark Mitzvah.”…
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News He’s No P. Yiddy
Almost since its inception, hip-hop has had a Jewish element. But for every group with street cred — think the Beastie Boys — there seems to be twice as many kitschy outfits like Two Live Jew and MC Paul Barman. Enter Sneakas, ne Yoni Ben-Yehuda, a 22-year-old budding hip-hop artist who is striving to take…
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