Like a lot of kids his age, 6-year-old Dylan Siegel loves coming up with stories. But unlike most kids, he has a best friend with a rare genetic disease. So when Dylan wanted to raise money for a cure for Jonah Pournazarian, 7, who suffers from Glycogen Storage Disease, he decided to do it in a creative way.
“I suggested that he set up a lemonade stand,” his mother Debra Siegel, of Beverly Hills, told the Jewish Journal. “But he said he wanted to write a book.”
Dylan finished writing and illustrating the pages of “Chocolate Bar” the next day and urged his parents to help him publish the book, the paper reported.
Glycogen Storage Disease is a metabolic disorder that requires doses of cornstarch to be administered around the clock through a feeding tube. Jonah has an extremely rare form of the disease, type 1B, which has not been widely studied.
In two months, sales of the book — along with actual chocolate bars donated by Whole Foods — have raised more than $25,000 for the fund, according to the Chocolate Bar website. Dylan hopes to eventually raise $1 million.
“I laugh because it’s just so cute that a six-year-old had a book signing,” Jonah’s dad, Rabin Pournazarian, told the Beverly Hills Weekly.
Los Angeles Jewish Boy Helps Ailing Friend — By Writing 'Chocolate Bar' Book