This is the Forward’s coverage of Jewish culture where you’ll learn about the latest (and sometimes earliest) in Jewish art, music (including of course Bob Dylan and Leonard Cohen), film, theater, books as well as the secret Jewish history of…
Culture
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Israelis Champion American Stem-cell Legislation
Dr. Shulamit Levenberg pulls out a dish of human embryonic stem cells from an incubator and carefully places them under a microscope to see how they are beginning to take form as human tissue. Levenberg, a researcher at the Technion University in Haifa, is working on cutting-edge tissue engineering research with the help of human…
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The Dreaded ‘T-Word’
At least no one can say that someone at the British Broadcasting Corporation, better known as the BBC, isn’t consistent. After being criticized for years for its refusal to use the word “terrorists” to describe those folks who, generally of the Islamic persuasion, make a habit of doing things like flying airplanes into the Twin…
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Truckers Spread Message of Niemann-Pick Awareness
With their stereotypically gruff demeanor, truck drivers are not often known for their charitable efforts. But in Fort Atkinson, Wis., truckers are playing a key role in raising public awareness of Niemann-Pick disease, a debilitating genetic disorder that often kills its victims before they reach adulthood. W & A Distribution Services, a trucking firm based…
The Latest
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These Are the Journeys
The last portion in the Book of Numbers, Mas’ei, begins with an ancient version of a Triple-A guidebook: “These are the journeys of the Children of Israel, who went forth from the land of Egypt according to their legions, under Moses and Aaron.” (Numbers 33:1) During their 40-year sojourn, the Israelites decamped in 42 places…
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How a Young Woman Copes With a Rare Genetic Disorder
‘My gums are peeling,” said a 22-year-old Elli Resnick to her mother as she removed a piece of salmon-colored flesh from her mouth. Other clues had been tipping off Resnick that she might be ill: She suffered from frequent bloody noses, always had a “potato chip feeling” in her mouth and, because she couldn’t eat…
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San Francisco To Get a Genetics Center
Four years ago, Michael Rancer, an administrator at the University of California, Berkeley, lost his son to familial dysautonomia, a rare genetic disorder found among Ashkenazic Jews that causes the nervous system to deteriorate. Today, Rancer is one of the prime movers behind a proposed new center for Jewish genetic diseases in San Francisco that…
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NEWS AND ADVANCES IN BRIEF
When clinical trials began two years ago for treatment of Late Onset Tay-Sachs with the drug Zavesca, the trial was scheduled to last one year, with a possible 12-month extension. But because LOTS is such a rare disease, with only 200 known cases nationwide, researchers at New York University’s School of Medicine and the University…
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Drug May Prolong Lives of Tay-Sachs Babies
For the first time ever, infants with Tay-Sachs disease may have a fighting chance at prolonging their lives. In July, the pharmaceutical company Actelion approved a contract for clinical trials of the drug Zavesca for treatment of infants with Tay-Sachs disease. The proposal marks the first clinical trial ever to involve infants suffering from the…
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NYU Move To Offer 16 Tests Ups the Ante for Screening
In September, New York University Medical Center will become the first medical facility in the country to offer Ashkenazic Jewish couples tests for 16 inheritable genetic diseases, an expansion from the nine tests it offered until a year ago. Welcomed by some in the medical community as an advance in patient care, the move is…
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Mixed-heritage Family Deals With Genetic Tragedy
When Rachaeli Fier uttered her first word — abba, or father — her parents had no idea it would be her last. Rachaeli was born a perfect baby girl, a “designer baby,” as the hospital’s delivery staff called her. Now, Eric and Nicole Fier watch helplessly as Rachaeli spirals downward in rapid, steady regression. Two-and-a-half-year-old…
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Breast Cancer Test Patent Causing a Furor
An American firm’s new European patent on a screening test for a genetic mutation that causes breast cancer has created an uproar among geneticists in Israel and Europe, who say the patent raises ethical questions because it targets Ashkenazic Jews. The firm, Myriad Genetics, of Salt Lake City, Utah, was granted the European patent for…
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