Laurie Strongin Discusses Her Fight To Save Her Son

In 1995 Laurie Strongin’s son Henry was born with Fanconi anemia, a rare genetic disease most common in Ashkenazi Jews. The disease, as Strongin and her husband quickly learned, is almost always fatal. But scientific advancements gave them the hope that they might be able to save their newborn son. Pioneering the use of an embryo-screening technique, Strongin struggled for years to give birth to another child whose bone marrow could be used to cure Henry. But in the end, she ran out of time.

Strongin, author of the book “Saving Henry: A Mother’s Journey,” wrote this essay for the Forward’s annual special section on genetics. She also spoke recently with the Forward for this audio slideshow:

Tagged as:

Written by

Nate Lavey

Your Comments

The Forward welcomes reader comments in order to promote thoughtful discussion on issues of importance to the Jewish community. In the interest of maintaining a civil forum, The Forward requires that all commenters be appropriately respectful toward our writers, other commenters and the subjects of the articles. Vigorous debate and reasoned critique are welcome; name-calling and personal invective are not and will be deleted. Egregious commenters will be banned from commenting. While we generally do not seek to edit or actively moderate comments, our spam filter prevents most links and certain key words from being posted and the Forward reserves the right to remove comments for any reason.

Recommend this article

Laurie Strongin Discusses Her Fight To Save Her Son

Thank you!

This article has been sent!