The Landsman family is raising money to treat Canavan Disease, a fatal genetic disorder that hits Ashkenazi Jews hardest, including their sons.
Couples who participate in a trip organized by Honeymoon Israel will get a coupon for genetic screening, as well as information about Jewish genetics.
The study could have major implications for treating two seemingly unrelated diseases, researchers say.
“I wish I had known the can of worms I was opening.”
Knowing these mutations will help doctors create personalized treatments based on a patient’s genetic code.
“That is amazing,” David said upon hearing the news. “Alright. Cousin Bernie.”
“You’ve gotta go for what you love, and not look back thirty years, forty years later and say, ‘I never tried,’” Rosbash said. “You gotta try.”
23andMe made its name in direct-to-consumer ancestry tests; now it plans to use the data it’s collected to help pharma companies develop new drugs.
From a Jewish perspective, genetics are much less important than people think they are.
Marketing the sensational has always been a feature of 23andMe’s strategy that has gained it injunctions from regulatory bodies.