A famous rabbi’s son died of a disease like the one in Broadway’s ‘Kimberly Akimbo’
Rabbi Harold Kushner wrote ‘When Bad Things Happen to Good People’ after his son died of progeria. Here's why his daughter hasn't seen the Tony-winning show
disease
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Fast Forward New hope for Gaucher disease as experimental treatment begins trials
The genetic disease predominantly affects Ashkenazi Jews
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News She needs a kidney. The pandemic is in her way.
The coronavirus got to Rachel Bialer’s kidney before she could. Earlier this year, the Port Washington, Long Island woman had hoped that a 27-year-old social worker in San Diego, Calif., might be a compatible kidney donor for her. But surging coronavirus infections in San Diego make it unlikely the social worker will be able to…
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Fast Forward First Genetic Disease Screening Kit For Consumers Gets FDA Approval
23andMe, the genetic testing service co-founded by Anne Wojcicki, has won landmark approval to administer tests for risk of developing 10 hereditary illnesses. In a new ruling, the Food and Drug Administration reversed its 2013 decision to deny the company approval. Included among the conditions it screens are Parkinson’s Disease, Alzheimer’s Disease, celiac disease and…
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Forward 50 2015 Tom Frieden
For six months up to April 2015, Tom Frieden, 55, felt the weight of America’s panic. As the director of the Centers for Disease Control and Prevention, Frieden was the government’s principal contact in stopping the Ebola virus epidemic in America. Starting in 2013, Ebola had ravaged West Africa, killing thousands. Proving difficult to quarantine,…
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Culture Non-Jews Hit by ‘Jewish’ Diseases Fall Through the Cracks of Genetic Screening
For three days in April, about 70 families whose lives have been upended by Tay-Sachs disease gathered in San Diego for the annual National Tay-Sachs and Allied Diseases conference. The event — which attracted families caring for children with Tay-Sachs, as well as those who have lost loved ones to the degenerative disease that claims…
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News Jewish Baby’s Rare Immune Disorder Attracts Global Sympathy — and Support
Any Jewish mother thinks her baby boy is special. But Amanda Zablocki’s son is one in a million — and in one of the most heart-wrenching ways imaginable. Idan Zablocki is 1 year old. Three months ago he was diagnosed with a genetic disorder called Hyper IgM syndrome, a rare immune deficiency that actually affects…
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Culture How Do You Cope When a Disease Causes Your Body To Attack its Own Skin
About once a month, Rebecca Oling develops painful lesions inside her mouth, a symptom of a rare skin disease she’s been battling since 2004. With medication it takes the lesion roughly a week to dissipate. But Oling, in remission, considers herself one of the lucky ones. Feeling stressed by the deaths of her stepfather and…
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Opinion The group behind Project 2025 has a plan to protect Jews. It will do the opposite.
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Fast Forward ‘A sense of wariness’ for many Jews when they see keffiyehs in public
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