Tay-Sachs disease has been significantly curbed in the Ashkenazic Jewish community, thanks to increased awareness and a comprehensive screening process — which is especially popular in Hasidic communities. The same cannot be said for the Cajun community in Louisiana, which also suffers from a high disposition to Tay-Sachs; the community is not fully aware of…
The Senate this July voted unanimously to name September National Tay-Sach’s Awareness Month. The resolution was introduced by Senator Sherrod Brown of Ohio and co-sponsored by Senator Evan Bayh of Indiana. At this point, Tay-Sachs, a hereditary degenerative neurological disease, has no cure. The National Tay-Sachs & Allied Diseases Association, Inc., the oldest genetic disease…
One of the largest collaborative research teams ever assembled has concluded a decade-long study that may unlock the secrets behind Crohn’s disease. The National Institute of Diabetes and Digestive and Kidney Diseases IBD Genetics Consortium and collaborating centers have identified 21 new genes that play a role in the appearance of Crohn’s. Crohn’s is an…
In an article she wrote this past spring for the Journal of Law, Medicine & Ethics, bioethicist Laurie Zoloth approached from a Jewish perspective the moral choices posed by advances in genetic and medical research. While acknowledging the public sense of “moral panic” at the thought of genetic enhancement, she argues that the commandment to…
A broad screening program in Israel for Type 1 Gaucher disease, the most common of the Jewish genetic diseases, is proving controversial, Israeli researchers noted in a September 2007 study in the Journal of the American Medical Association. Screening programs are encouraged for severe diseases where couples at risk could be identified before giving birth…
The Forward presents this section to provide information on some of the more serious Jewish genetic diseases. There are about 20 “Ashkenazic diseases,” not counting the higher rates of at least four cancer-related genes. The diseases are more prevalent in the Eastern European Jewish population because of centuries of endogamy — literally, “marrying within.” Bloom’s…
The MILO Gladstein Foundation 7095 Hollywood Blvd., #583 Los Angeles, CA 90028 www.bloomssyndrome.org [email protected] Lauri and Richard Gladstein established the Milo Gladstein Foundation for Bloom’s Syndrome in 2004 shortly after their son Milo was diagnosed with the disorder. The foundation’s goal is to fund research aimed at finding a treatment for the disease. Canavan Foundation…
Beautiful paintings and other works of art line the room. A rapt and attentive audience looks upward at the sea of color, expressing the personalities and feelings of those struggling with what it means to have a genetic disease. Expression of Hope, an exhibit sponsored by Genzyme Corporation, is designed to bring awareness of Gaucher…
מאַטי מענדלאָוויטשעס ברודער, וואָס האָט יאָרן לאַנג געליטן פֿון דעפּרעסיע, האָט הײַיאָר זיך גענומען דאָס לעבן. .
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