By Ellen Friedrichs
To Test or Not, for This Rare Bone Marrow Disease?
When Haley Well was born in 2006, doctors were initially afraid that the baby wouldn’t survive. “She was so blue that they thought she wasn’t getting any oxygen,” recalled her mother, Jordana Well. Early blood work revealed that the newborn had a dangerously low platelet count and her blood wasn’t clotting properly. Genetic tests then…
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