When news broke earlier this week about the death of Adam Krief, a 31-year-old Jewish father of three who had been publicly battling blood cancer, most reports mentioned how Krief’s outreach included posts and tweets from celebrities. JTA’s story about his loss began “Adam Krief, a Jewish cancer patient whose search for a bone marrow…
(JTA) — Even before their daughter, Ayelet Galena, was diagnosed with a rare bone marrow disease called dyskeratosis congenita around her first birthday, parents Hindy Poupko and Seth Galena knew they wanted to have more children. But once the diagnosis arrived, the couple had a dilemma: There was a fair chance their next child would…
Akiva Galena (JTA) — In January 2012, Hindy Poupko and Seth Galena shared the tragic news with tens of thousands of readers that they had lost their 2-year-old daughter, Ayelet Galena, to a rare bone disease. For months, the couple had chronicled their daughter’s struggle with the disease on a Tumblr blog, amassing tens of…
Ayelet Galena’s death at the age of 2 from a rare bone marrow disease launched a wave of grief around the world. For months, thousands followed the little girl’s fight for her life with the Eye on Ayelet blog, set up by her parents, Hindy Poupko and Seth Galena. But more than a year and…
Seth and Hindy Poupko Galena freely admit they do not know what it feels like to be affected by senseless gun violence. But the Jewish couple does know the pain of losing a young child, having struggled as their 2-year-old daughter, Ayelet, fought a losing battle with a rare bone marrow disease. When Seth Galena…
I learn a lot about leadership by overseeing the painstaking but ultimately rewarding process of compiling the Forward 50 each year, of trying to identify the American Jews who have had the greatest impact on our lives in a variety of fields, from politics to culture to sports. And I learn even more about leadership…
Just over six months have gone by since little Ayelet Galena passed away, following a bone marrow transplant. The toddler’s struggle with a rare disease drew an outpouring of sympathy and support online. And Ayelet’s short life continues to have an impact. The effort of her parents, Seth and Hindy Poupko Galena, modern Orthodox Jews…
Yesterday was the anniversary of my father’s and stepmother’s deaths, which I marked with the lighting of memorial candles, a good cry and, for the fourth consecutive year, a Facebook post. By the end of the day, the post, and accompanying photographs, had garnered more than three-dozen comments and “likes.” Beth Kissileff, in a Sisterhood…
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