This is the Forward’s coverage of Jewish culture where you’ll learn about the latest (and sometimes earliest) in Jewish art, music (including of course Bob Dylan and Leonard Cohen), film, theater, books as well as the secret Jewish history of…
Culture
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The Challenging Financial Model of Jewish Early Childhood Education
When she sees how excited her 7-year-old son, Isaac, is to go with her to pick up his younger sister, Tzipporah, at his old preschool, Ginna Green is convinced that she and her husband made the right decision to send their children to Gan Mah Tov, in Oakland, Calif. Green is confident that the Jewish…
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The Nigun Project: Surely, There Will Be Vodka
For the latest installment of the Nigun Project, I am indebted to a Forward reader who posted a link in the comments section of a recent piece in the nigun series. The link led me to a website that contains many selections from a wonderful multi-volume series of albums of Chabad nigunim released during the…
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For Henry’s Sake: Pioneering a Genetic Frontier
Ten years ago, the first-ever bone-marrow transplant was performed using the umbilical cord blood of a baby deliberately selected and implanted through a combination of in-vitro fertilization and genetic testing to save the life of his older sibling. The embryo-screening procedure known as pre-implantation genetic diagnosis, or PGD, had previously been used to enable parents…
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Laurie Strongin Discusses Her Fight To Save Her Son
In 1995 Laurie Strongin’s son Henry was born with Fanconi anemia, a rare genetic disease most common in Ashkenazi Jews. The disease, as Strongin and her husband quickly learned, is almost always fatal. But scientific advancements gave them the hope that they might be able to save their newborn son. Pioneering the use of an…
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The Ties That Bind
What is the essence of Jewish identity? Is it revealed in the choices we make, like giving tzedakah or observing the Sabbath, or is it in our genetic code? Is it a matter of faith, or a matter of heritability? Is it something we can choose, or is it a biological imperative embedded in nearly…
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Discovering the Newest Jewish Genetic Disease
One day, about four years ago, a young couple came to Dr. Alan Shanske’s office looking for help. They had already been to numerous doctors, but none of them was able to diagnose their 4-year-old son. The boy, Shanske recalled, was developmentally delayed, uncoordinated with poor muscle tone, had experienced breathing problems as an infant…
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Sick Texas Sheep May Aid Tay-Sachs Fight
Fred and Joan Horak have been ranchers since 1985, so 11 years ago, when Joan noticed that two lambs from her flock had tilted heads and wobbly legs, she knew something was amiss. Little did the Horaks know that their discovery of these two sick lambs would end up providing new hope in the search…
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Intermarriage Spurs Tay-Sachs Advisory
Citing rising Jewish intermarriage rates, the leading organization devoted to combating Tay-Sachs is urging doctors to encourage the use of more comprehensive testing methodology to identify carriers of the deadly genetic disease. The National Tay-Sachs & Allied Diseases Association issued its position statement on Tay-Sachs carrier screening in September 2009. The statement stressed the importance…
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Improve FDA’s Rare Disease Review Process
The Jewish community has long been a leader in supporting medical research and education efforts, especially with regard to those diseases that disproportionately afflict people of Ashkenazi Jewish descent. Creating coalitions with other patient advocates in the rare disease community would give American Jews an opportunity to advance efforts to fight diseases that disproportionately affect…
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Enlisting Rabbis in the Push for Screening
“My wife and I were married by two rabbis, one Conservative and the other Reform, and neither of them gave us any information about Jewish genetic diseases.” So begins the story of Lawrence Sernovitz, himself now an associate rabbi at the Old York Road Temple-Beth Am in Abington, Pa. A little more than a year…
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Test, and Then Test Again, Experts Advise
With additional mutations for genetic diseases continuing to be discovered among Ashkenazi Jews, genetic screening advocates are urging people to get tested for newly identified diseases, even if they have already been tested for other diseases. Some people may assume that since our genetic make-up is fixed, a DNA test is something that needs to…
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