Tay Sachs
My Daughter Was Dying Of Tay-Sachs. I Decided To Post About It On Facebook.
How could I continue posting happy family photos, after discovering the devastating diagnosis?
How The Jews Beat Tay Sachs
Not long ago, having a baby was a fairly straightforward venture. When a couple decided to have a child, they’d ditch the birth control pills and dim the lights. But with no plastic wand with twin purple lines to offer instant at-home confirmation, there was no easy way to gauge success.
Transplanting for Tay-Sachs, It’s a Decision to Have Hope
Lorelei Sandoval and her husband had noticed their four-month-old son, Isaac, had an eye problem. It wasn’t until the doctor asked them if they were Jewish descent that Sandoval started getting nervous.
Gene Therapy Offers Hope for Fatal Jewish Diseases — but How Soon?
Gene therapy is making progress in treating genetic diseases affecting Jews, but scientists say challenges still remain.
Two Grieving Mothers, One Friendship
Becky Benson and Emily Rapp both lost a child to Tay Sachs disease. Other than that, they had little in common – until they became each other’s ‘grief mentor.’
A Network for Courageous Parents Offers New Views, Advice on Grief
Grieving parents find support and a way to cope with their child’s fatal diagnosis in the Network For Courageous Parents, a new videocentric online resource.
Non-Jews Hit by ‘Jewish’ Diseases Fall Through the Cracks of Genetic Screening
Tay-Sachs is probably the best known ‘Jewish’ disease. But the vast majority of babies born with the disease are not Jewish.
Cystic Fibrosis Knows No Borders
JEWISH GENETICS: A Jewish doctor and a West Bank colleague encourage Palestinians to undergo genetic testing for cystic fibrosis.
Jews' 'Ethnic' Category Scrapped for Testing
Jews should no longer be categorized by their ethnic origin when being tested for hereditary conditions, says the Health Ministry. The mixing of Jewish communities - mixed heritage - has rendered such categorization pointless, the ministry’s community genetics department says.