How could I continue posting happy family photos, after discovering the devastating diagnosis?
Not long ago, having a baby was a fairly straightforward venture. When a couple decided to have a child, they’d ditch the birth control pills and dim the lights. But with no plastic wand with twin purple lines to offer instant at-home confirmation, there was no easy way to gauge success.
Lorelei Sandoval and her husband had noticed their four-month-old son, Isaac, had an eye problem. It wasn’t until the doctor asked them if they were Jewish descent that Sandoval started getting nervous.
Gene therapy is making progress in treating genetic diseases affecting Jews, but scientists say challenges still remain.
Becky Benson and Emily Rapp both lost a child to Tay Sachs disease. Other than that, they had little in common – until they became each other’s ‘grief mentor.’
Grieving parents find support and a way to cope with their child’s fatal diagnosis in the Network For Courageous Parents, a new videocentric online resource.
Tay-Sachs is probably the best known ‘Jewish’ disease. But the vast majority of babies born with the disease are not Jewish.
JEWISH GENETICS: A Jewish doctor and a West Bank colleague encourage Palestinians to undergo genetic testing for cystic fibrosis.
Jews should no longer be categorized by their ethnic origin when being tested for hereditary conditions, says the Health Ministry. The mixing of Jewish communities - mixed heritage - has rendered such categorization pointless, the ministry’s community genetics department says.