Los Angeles Jewish Boy Helps Ailing Friend — By Writing 'Chocolate Bar' Book

Image: youtube

Like a lot of kids his age, 6-year-old Dylan Siegel loves coming up with stories. But unlike most kids, he has a best friend with a rare genetic disease. So when Dylan wanted to raise money for a cure for Jonah Pournazarian, 7, who suffers from Glycogen Storage Disease, he decided to do it in a creative way.

“I suggested that he set up a lemonade stand,” his mother Debra Siegel, of Beverly Hills, told the Jewish Journal. “But he said he wanted to write a book.”

Dylan finished writing and illustrating the pages of “Chocolate Bar” the next day and urged his parents to help him publish the book, the paper reported.

Glycogen Storage Disease is a metabolic disorder that requires doses of cornstarch to be administered around the clock through a feeding tube. Jonah has an extremely rare form of the disease, type 1B, which has not been widely studied.

With support from the fund Jonah’s parents created, Dr. David A. Weinstein of the University of Florida is searching for a cure.

In two months, sales of the book — along with actual chocolate bars donated by Whole Foods — have raised more than $25,000 for the fund, according to the Chocolate Bar website. Dylan hopes to eventually raise $1 million.

Dylan and Jonah sold copies at the Stephen S. Wise Temple Mitzvah Day in November and a December appearance at Barnes and Noble.

“I laugh because it’s just so cute that a six-year-old had a book signing,” Jonah’s dad, Rabin Pournazarian, told the Beverly Hills Weekly.

Written by

Susan Armitage

Your Comments

The Forward welcomes reader comments in order to promote thoughtful discussion on issues of importance to the Jewish community. In the interest of maintaining a civil forum, The Forward requires that all commenters be appropriately respectful toward our writers, other commenters and the subjects of the articles. Vigorous debate and reasoned critique are welcome; name-calling and personal invective are not and will be deleted. Egregious commenters will be banned from commenting. While we generally do not seek to edit or actively moderate comments, our spam filter prevents most links and certain key words from being posted and the Forward reserves the right to remove comments for any reason.

Recommend this article

Los Angeles Jewish Boy Helps Ailing Friend — By Writing 'Chocolate Bar' Book

Thank you!

This article has been sent!